My Health Condition!

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(Edited)

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I was inspired to write this by @josediccus. He wrote about his health battle here and it really got to me (in a good way)! I can relate. It's encouraged me to be more forthcoming with my own health battle. I've touched a little on it before, but I am can I try to go a little bit more in depth.

The Condition

OK, I'll try to keep this brief. In 1997, I was diagnosed with AOA2. That is shorthand for, Ataxia with Ocular-motor Apraxia, Type Two. I know it's a mouthful, right? Basically, it's s degenerative neurological disease that affects my balance, eye movements, speech, and coordination. It is an extremely rare condition, affecting approximately 1 in 900,000 people...

The Symptoms

Because of my balance and coordination problems, I use a wheelchair. I cannot walk without a lot of assistance I get tremors in my hands, and my hands are very clumsy and weak. My dexterity sucks. I cannot write or use a computer very well. (I am doing this post by voice to text and it will take me some time to edit.) My eyes are messed up too- I see double! But, perhaps the worst symptom on I face, is the constant fatigue! The symptoms are ever-changing, depending on the day. Sometimes they're good, other times they're bad.

Health Is Everything

Despite my situation, I try my best to be as healthy as I can! I have physical therapy twice a week, and I try to go to the gym around 3 to 4 times a week. I only get 1 to 2 rest days, and I like it that way. I have never been stronger, and other than my disease, I'm pretty healthy.

I try to eat relatively healthy, too! I guess I'm just trying to give my body the tools to adapt my situation. I think it's working.

I'm Blessed

This disease is a lot, but don't feel sorry for me! I don't! I have a lot to be thankful for. I have a wonderful son, and an amazing family. I don't think I could do it without them.

My disease has given me a lot more positives, than negatives. It has taught me so much!

So, thank you for reading, and remember, no matter your situation, teach yourself to think positively. It's amazing with a little positive thinking can do!



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3 comments
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Highly motivational, especially after almost a full day of consuming tons of energy on bullshit.

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I have known about your condition for a while now because there's been a place you've once mentioned it. As for my own condition, I found it very difficult talking about it because of the pity I might get from people, it's pretty rare condition too, but I felt it's who I am, I'm getting to that age in life where I cannot hide it anymore, so it takes a lot of courage to talk about what a lot of people wouldn't really understand the burden or pain. I'm glad you've got a wonderful family. I'm hoping to have one somedays.

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Keep winning, there will be good and bad days, best thing is to try and enjoy our lives the way we can

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