Revisiting My Health Condition.
It's been days now, I still haven't been able to do anything tangible. It's been difficult to play splinterlands, engage on hive, reply to comments, shill the Blockchain on Twitter, or even engage in full, manual curation. The reason is that my ulcer episodes came back, this time, stronger and crazier making it difficult for me to even think or do anything. For me, anxiety, fear, or a little discomfort takes away my ability to create anything, because when my mind is not in perfect synch with my body, a certain discord. Normally when these episodes come, they happen as a result of a shift in my eating pattern, but I tend to notice that the episodes are getting worse with age, and even when I try to adjust my eating pattern and take my medications, still end up with unbearable pain throughout the day.
If you remembered, I told my story here about living with this rare niggling health condition. Surprisingly I've managed to stay off the hospital for close to 20 years of my life, that's over 80% of my life. When I was in my early 20s, I knew people who lived with a similar and even more serious version of this health condition, they were always in and out of the hospital. However, this wasn't the same for me. I worked 9 to 5 for close to 5 years, without going to the hospital. I even did extra jobs for extra pay, because I had to take care of my mother, throughout these periods, I didn't know where I found the mental fortitude to keep going.
Maybe it was because I was younger and toughened by the harsh family conditions I was exposed to. While this is the upside, I guess I couldn't escape the downside. When I get the malaria, the infections, and anemia, (which were inevitable) that came with it, it usually sidelines me for weeks. I've been sick on the job and lost countless jobs because I couldn't recover on time, I've dropped out of school on several occasions, hit reset, and begun anew, and when the crises and the illness return, it sends me back to the sideline. I necessarily didn't need to go to the hospital because my aunt was a nurse, she had gotten the medications that were suitable for me and I took them constantly.
Of course, I had parents who were ignorant of my condition, they went through a sort of divorce when I was fourteen, I was left in the cold for two years with my brother. Fortunately for my brother, he never inherited the SC gene traits from my parents and he was perfectly healthy, I hit a series of illnesses during this divorce, and that was when I taught I was going to die, but anything It felt like I would go under, I came back up and continue my life like nothing happened. So majorly, my parents became the reason why I fled and went to live with my aunt who was a nurse, she spotted my condition, but I was already 17 by then. I was angry and lived in denial of it till I was 23.
Life seemed to make no sense to me. Believe me, I was the guy with big dreams, I had dreams so big, I couldn't even fathom them myself. But firstly, I suffered a mental limitation as a result of my biological limitations. Surprisingly, my friends, coworkers, and the people who were close to me never knew I had this condition, all the bosses I had never known. I was afraid to lose opportunities, so I hid behind my mental strength. Oh, believe me, I had this mental fortitude. Even if my body was breaking apart, I always stay on the job. Because I had to get paid. My friends never noticed too, they just knew I was frequently sick, but when I came back, it used to look like nothing happened. I have undertaken very dangerous jobs to the detriment of my health situations.
There was this one time I felt like my heart would collapse. I took pain meds for over three weeks, while still working tasking jobs. It wasn't like these jobs paid huge money, but originally, we all know the situation in Nigeria, the unemployment seems to hit differently. Whether you're sick, blind, lame, or deaf, or with invisible health challenges, you'll have to pay and need money. There's no exemption. But my resolve was that if I died on the job, it would be better than wallowing in unemployment and lack. However, I never had to face an inferiority complex until I started dating. The dating phenomenon came with these crazy expectations. But, after my last relationship at 21, I stayed away completely.
There wasn't any use for it. Plus, you need money to build a relationship, since I couldn't offer any of that, I didn't think they were going to be the motivation for anyone to stay. Of course, women have come along the way, but I wondered if they'd stay if I told them what I was going through. My life was uncertain, certainly, there wasn't any need to involve anyone in all that uncertainty, because I became dependent on myself, I felt I was the only one who could carry my burden and no one else. Of course, my aunt has been the only one there, through thick and thin. The toxicity in my parents' marriage, lasted till they were both dead, but, I had already left them immediately after I left secondary school.
Staying with my aunt meant meds upon meds, the situation became more concerning as I aged, I couldn't do the things I could do when I was 18 or 19. But I never for one day needed to go to the hospital. I didn't know how I got the sustenance. I didn't even medicate heavily I think It was because I found the perfect medicine for my system, but it go on time, and I stopped taking any medications and all. The last job I took, left me ill for one month, and when I recovered, I just officially retired and my 9 to 5 days were over. Even with the limitations that came with my life, I still felt I could live a life of abundance some days, build a nice comfortable house and eventually enjoy my life.
This hasn't come without its challenges. There was a time I had to report to the HOD of the department of my school about my health because my project supervisor wanted to squeeze the life out of me with stress. She affirmed that I didn't look at what I was going through, but she softened the process for me. All my life, I've had to take the difficult process, because I liked proving to people that I was strong, I didn't want shortcuts, because I couldn't bear the long processes. Fast-forward to today, I still hit fatigue, the anemia still gets to me, and the most recurrent is the crazy stomach ulcer. It's become more frequent and more painful, I guess, it's probably because when one age, the immune system becomes less potent.
I've tried to rearrange my feeding schedules so as not to skip meals, in the past, the pain would disappear when I do this. But these days they don't. Eventually, they do, but it comes back quicker than I expected. I try to stay away from online assessments of my condition because they scare the living hell out of me. It's difficult to tap into the suffering out there, it shuts me off from the real world and sends me into the rabbit hole of hopelessness. Recently I started doing so again when my ulcer episodes began, and believe me, it's created this crazy fear inside of me once again. The main goal is to find another solution to these stomach episodes..... Of course, I'll be back again to flipping assets, looking for better ROI, creating solid content again, and planning for the future. Where I've come from is harder than where I'm heading to.
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I won't lie, I'm almost in tears because I could actually picture all of this... I'm also fighting ulcer at the moment but it has subsided a lot, you just reminded me that I have one.
I didn't know your parents also went through a divorce issue... It's never a good story to tell, I still feel bad about my parents divorce 😒
So sorry about the hardship and health challenges you've been through, I won't say it will all go away but I wish you a more stronger sustenance to get through all of it that may come your way.
You're strong, it's not you trying to prove you're strong... I can tell that from all I've just read.
Hopefully, doing hard jobs have come to an end for you... Hive will help us 🥲 I believe so.
The ulcers have become frequent and the pain is crazy, I just got an hour to two hours of no pain and that was how I was able to write this. If not, over 14 hours the pain is there and like yours too, mine comes and goes. This time, I don't know why it hasn't gone.
Oh, similar with yours too? With my situation and all the mental toture, it's something no child should ever experience. Parents sometimes does things that affects their children and it hurts.
Thank God, well, it won't go away like you've said, sustenance is probably all that matters and the inner strength to perverse. I think I'm such a guy, I just keep going and going.
Eventually it will, if everything turns out well, life will become as easy as I want it .
Thank you for the kind words...
What I'm happy about is that, you're the one saying all these positive words which I think will go a longer way than anything anyone will say to you to keep you going.
Stay strong for us bikonu 😁🥰
Well, positive words begat positive words, I think we all need someone to inspire us sometimes, so we can tap from their inspiration.
For me, you do that well so often, and I appreciate it.
I'm happy to know that, keep staying positive and strong 😊
Man, Get well Soon.
Don't create for a little while... Maybe you should give more time to yourself taking care or like a bit different routine might help you.
Responsibilities keep you moving... I wish you'll be fine and get rid off this rare condition.
You're so strong and inspiration to many I believe.. will remember you in prayers.
Thanks for the well wishes.b
Ooh, this is a heart-touching scenario, if only parents know the impact divorce pushes on their children they will not even think of that.
So sorry about your health condition, and I wish you get better soon.
You can also try to visit the hospital for some test it will help you know if you need to change your medication and the extent of the ulcer too.
Get well soon dear.
Well, I think the some of parents and the marriage of the early 1990s weren't totally conscious, neither did they show some level of awareness. I think that is how it is for them, but it's the parents of these days that seem to make better choices.
Thank you, I'll check that out.., however, my medications are fine, I just want to know why the ulcer is recurrent..
That's it, most marriages then are connect, we know better now.
Ok, that will be fine too
I hope you can recharge your batteries and feel better soon. In my opinion, the stomach is one of our most critical organs that controls our health and well-being. I can imagine managing your life with this trouble is not so easy.
Thank you so much, although the condition is more complex than the stomach issues, it's just part of the complications that tends to give me aches and concern these days.
Sorry to hear that my friend. I wish you all the best and send you some good vibes. !LUV
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💪🏻 I hope it's not too serious, much encouragement
Thank you, appreciate
I hope you're doing fine now
Stay strong Jose, you are stronger than your health issue and have overcome it several times, it is amazing how strong the human spirit is, I almost compare your health situation with Bitcoin dying numerous times but still surviving.
Your aunt seems to have played a vital role in your life, I notice you talk about her often, good to have such a person in our lives.
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If Bitcoin does 100k in the next bull run, then I'll finally agree that I'll resurrect again and again. Hahaha thank you. As per my aunt, well, I didn't know what I'd have done without her, especially with the level of unawareness my parents showed.
You are strong, really determined and most of all realistic and I admire that about you. You are sure going through a lot than what any of us could ever imagine but you have successfully make us feel that it would be well, that's really incredible.
I'm sending your aunt a big hug for all she has been doing, I'm sure it must also be hard for her watching you go through so much pain and you are really going through even more pain because you still hide a big part of that pain just to make her feel better and even smile, hmm, I'm speechless now.
Get well soon JJ, this will pass because you are one of a kind if you ask me 🙂.
Well, I tend to think there's no other option other than to keep going, it's one of those ideologies I've cultivated: keep going because stopping is not an option. As for aunt, she's done her part now, as I'm now independent as stay alone. But I look to her for guidelines in meditation and other things, so I guess it's what it is..
As for the pain, well, I see it as something that everyone feels. It's just that we all feel it differently and sometimes it challenges us in the biggest ways. Thank you for the kind words haha.
Thank you too, I'll say the same about you, thanks for all the constant check-up off hive. I know that sometimes, I just drift away.
Oh boy! You are absolutely right, if we leave everyone to talk about the different challenges they are going through right now, we will know that ours is almost nothing but then it does not mean we are not facing any.
I remember you said you live alone now and I think that is a really big step to show you are ready for whatever, bold you, hehe.
It's a privilege for me, I don't get to check on people as I should so when I do I'm happy.
But hope you've eaten Sha? Lol
You undoubtedly have a strong spirit. Warrior like spirit if you ask me because you always rise from the ashes and come to life anew everything time you hit rock bottom. We all have to play with the cards we've been dealt with and see how well we can navigate through life with them. I'm wishing you much inner and outer strength to help you move forward towards the path you set out for yourself :)
Get well soon and don't feel bad about taking time off. I have never had that situation but I do hope that it doesn't get worst. I hope there is a solution for your problem and that happens soon. Technology is improving at a rapid pace but I don't know if the medical companies want to cure anything. It should make things a lot better though if they can make a good medication.
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I think we manage the medical care we can manage, it's not much, but everyone have a system with which they can cope with. But, thanks for the comment, I appreciate
You are a strong man and I respect you for that and your journey has not been an easy one, I pray you get well soon.
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Thanks bro, I totally appreciate.
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You are a strong man and I know God will continue to give you strength to overcome this.
Parents going on divorce actually affects the children, I am sorry you had to go through one. You have made it quite good on your own and with the help of your aunt, that woman deserves the best hug there is.
I wish you a speedy recovery in your health, and I pray you shall overcome all this health challenges .the lord preserve and keep you in Jesus name
Thanks for the encouragement, I guess, we all experience such lows and no option but to bounce back.
You are welcome, yeah that happens in life, we sure will always come out stronger by Gods grace.
This is the first article I am reading today and you got me really emotional. If there is a better definition of being strong or resilient then it will be you, picking yourself up from time to time can be challenging but motivated yourself never to settle for less because of your health condition.
You have come a long way and I believe that you are still going a long way in life. You are an inspiration for people and I pray that you will live long to fulfill every one of your dreams.
The Lord is your strength bro.
Yeah, I have come a long way. Thank you for taking the time, I appreciate.
When people judge so easily, it just pain me, (I have stop judging or I try not to judge anyone or anything for the past few years). I believe everyone has their reason something they can’t tell others. A lot of people are going through a lot but it is easy for some random person to judge.
I’m sorry about the loss of your parents ( they should have seen the mistake they did. The greatness that you are going to become📌). That is why in every relationship you need to check your genotype and that of your partner.
I have some friends like this.. I have seen what they go through. A friend of mine don’t come to class every Wednesday and Friday.
That is why I have vowed that no matter the love I have for my partner, I will not put my children life at risk.
You are doing every well, you are a strong man. You will become all what you dreamt of. So, stay strong for us.
Kudos to your aunt… sending a huge love to her.
I don't know what emotions I felt as I read through this. I cannot imagine what you've and are currently going through yet it's strengthening to see that you have a positive resolve.
But maybe you should visit a hospital to know why the ulcer keeps coming back. Just maybe.
I really hope the pain subsides and that you never lose this verve.
Stay strong!
Thank you, I will do that and I appreciate you for reading and taking the time..
It is a really tough situation to battle but I believe you will come out better and stronger.
Thanks bro, I appreciate
I see how strong of a person you are for been able to tell your story amidst pain..I'm filled with so much pain, maybe because I've given care to someone in pains and I see how unbearable it is.
You'll be fine my dear, ensure you take your meals right on time time and most especially monitor what you take and see which ones to avoid trust me you'll be just fine.
I hope you don't get to your Lowest moment that will just make you loose all hope..
Sending you light &love
Ps: please I'm available.ask @hopestylist I'm not expensive oo. You don't need plenty money to maintain me . It's even snacks I Ike eating. I don't like material things😎
Thank you, my own sort of pain feels so overwhelming, I can't seem to shake it off in periods like this, I guess you understand..
Thanks for your words of encouragement..
Okay, you haven't posted in a while, I already tried to see if I could text you.. thank you.
I understand.but regardless please just try to stay strong alright.. I'm rooting for you..
And yeah I haven't been posting, been having my challenges too.
But I'll try to do more now. I'm back for good
Thanks, I'll check you up on discord then I'll text
Alright.
That's cool😊
@josediccus I checked you in discord.. Couldn't find you
What's your username, let me check you? It's josediccus #1599
What's your username, let me check you? It's josediccus #1599
@redna#0171
Okay, I'll check now 🤗
Gracias
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This is one of the most touching stories I have read in recent times. I'm so sorry for what you are going through, it still baffles me how you manage to write this lengthy story, well this is to show your zeal for commitment and hard work. I wish you quick recovery brother. Take care of yourself and get well soon.
Please flee away from the internet about things concerning your health. It's killing sometimes...I experienced this last year and I almost died and resurrected out of fear.
Neurologist said my son will undergo a kind of brain surgery...he explained the process to me, I came home and moved to the internet....hmmm
The bad mistake I made....what I saw, what I read was terrible 😔....the more I look at my son, the more I imagine loosing him... until I stopped reading all those info from different writers there...the fear was more than the sickness...I took my time and visited the doctor rather, I asked him all my 1001 questions and he provided the answers... with my reaction, he observed that I already have many info both the wrong and good one about the illness but the good thing is that I was clarified...till date, my son didn't even have any reason for the surgery.
@jossedicuss , I am so sorry about the pain you are going through.... please don't skip ur meal for any reason...ensure to have what to eat at all times...and I think you really need a wife now. Joke apart, I am serious 😂....a good wife who will look after you very well biko 😂
As a for the internet, I was hoping, I could get better information and of course people I could talk to. But it turned out that the informations I saw were just so scary I spent about two days sulking and not even able to do anything.
Yeah yeah yeah I believe God will do something with time for me
You definitely want to stay away from the internet when it comes to self diagnosing yourself with medical conditions.
One time many years back, I diagnosed myself with jaundice when I googled my symptoms, and I had the living shit scared out of me too. Since then, I try as much as I can to stay away from google for a peace of mind.
You’re doing really well taking care of yourself, man. I have on and off depression when I’m really stressed and that is exactly what I’ve been the last few days. My NSS working post wants to take my life for an underpaid job. I mostly stay away from Hive when the depression and stuff are happening, so I really commend you for still showing up and creating despite your more serious condition.
You need to pay more attention to your diet, bro. For real. I wish I took this advise I’m giving you myself. I’m sure the only reason why I don’t have ulcer is because I haven’t done the test. Because when it comes to bad eating patterns, I’m one of the worst there is. I mostly eat lunch for breakfast everyday because I’m late for work in the morning almost always and don’t have time for breakfast. At work, I go for lunch break a little past mid day, and sometimes that meal is the only one I have for the entire day!
I honestly don’t get why it’s so difficult for us to have and stick to a meal plan. I hope your condition gets better so you can get back to doing your thing here. Speedy recovery, man:)
I try as much as possible to stay away, but you know the internet is the best place to educate oneself, meet more people with my conditions, but it's turned out to be a disaster, fear unpon fear for me.
Ohh, I'm so sorry about that, hope you are fine now
Be strong I am sure you will rise again!
I'm sorry to hear about your health problems and I sincerely wish you to recover soon and be in great shape!
A strong hug!
Thanks, those are amazing words
I hear them from my heart friend and I perceive strength and dedication in you, I see the commitment and I know that warriors get up again!🤗
Hey buddy,
It's been long you've heard from me. Man, this is a lot. Honestly, I don't know how you do it but you do it anyway.
Hang in there man, you are on a journey and it is inspiring. Words may not do much but they are important especially positive words.
I look forward to chatting with you and catching up as well buddy.
Dante is here No Fear
Cheers
Thanks for the words of inspiration anyways.. yes, I've been hanging in there.
Yeah, I guess one of these days we'll catch up.
To say the truth, you are a strong person. With all these you said here and viewing from my own perspective, you are one kind that wants to keep going despite going through those challenges and you don't want others to know so you don't make them sad and start brooding.
In this country where you just have to do the tough job just to feed and make your dream a reality. We all have dreams and many times, many people including you are going the hard way, making sure things are perfect but here comes our health. It must be attended to and we don't have a choice than to let go and focus on it because if we are down, what else again?
No one would ever know what you are going through if you didn't speak out just as you did. Ever since I stumbled on your previous post talking about family and responsibilities, that was when I knew you are going through a lot but you just kept going for the better.
Your aunt is really a Godsent to you, if you must know. There are some who would take the advantage in maltreating you as they wish. I pray may God keep helping your aunt and also help and be with you, Jose.
What more can I say right now because I am lost of words but I will encourage you to get well soon and God give you His healing to recover quickly from those illnesses. My prayers are with you too.
Thanks for the words of encouragement, I've been so overwhelmed, and sorry for replying this late.
No, it's alright. You are always welcome 😊
I feel you, 24/7 pain is no fun and makes things a royal pain in the ass:(
Hope it calms down for you.
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Thank you, the pain is no fun at all
I read through your story. You are an inspiration to many people! Your aunt came across as a great lady. You are lucky to have people such people around your life.
!PIZZA
!LUV
!CTP
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I feel ya, I have a rare neurological disease that prevents me from doing a lot of stuff too. I am actually using voice to text right now, because today my hands do not want to cooperate. I cannot post much here, and when I do, it takes me a while. And some days are better than others.
Ohh wow, that must have been very difficult for you just as it's been for me. I also use voice to text when I'm overwhelmed with stress and somedays are good as you've said.. I'm glad you're making the most of hive to fufill some of your financial goals.