Dad Against Duchenne (@d-a-d) - Neoxian City

Dad Against Duchenne

Adelaide

In 2022 my son was diagnosed with Duchenne muscular dystrophy and now, person by person, I'm raising awareness about it.

about 2 months ago

FreeCompliments

Awareness Raising Walk 2024 A little over a week ago I completed the awareness/fundraising walk that my previous couple of posts have been in reference to. The goal was to, primarily, raise awareness of…

66

0

6.388 NEOXAG

3 months ago

FreeCompliments

Resilience - A (Very) Short Story Resilience is, in general terms, the ability to cope with stressful events without becoming overwhelmed by them. I know a little boy, who this week

116

0

9.961 NEOXAG

4 months ago

FreeCompliments

You. Can’t. Stop. It’s been some time since my last post where I outlined my plans to run an awareness raiser so that more people can learn about Duchenne muscular dystrophy (DMD). Since that…

84

0

14.541 NEOXAG

6 months ago

FreeCompliments

Because I Can... A couple of posts ago, I wrote about my son's recent school camp and how it was noticeably more difficult for him this year, than last year. As I concluded t

70

0

94.357 NEOXAG

7 months ago

FreeCompliments

Blindsided… A Bit Cough-assist Machine A few weeks ago, we had the second annual respiratory appointment since our son was diagnosed with Duchenne mus

53

0

8.376 NEOXAG

7 months ago

FreeCompliments

Birthday Trip Outside Marvel Stadium the day after the big win It’s my son’s birthday on Thursday and a couple of months ago, I asked him, just in

116

0

66.945 NEOXAG

10 months ago

FreeCompliments

The Invisibility from Disability A lot of my time in the past couple of years has been devoted to quiet contemplation. I've always enjoyed solitude and having time to just think and p

59

0

5.208 NEOXAG

10 months ago

FreeCompliments

Good Grief - Learning About The Stages of Grief Following from my introductory post about grief and how I’ve experienced it over the past couple of years now, I’d like to have a quick look at the stages

24

0

5.446 NEOXAG

11 months ago

FreeCompliments

Good Grief - An Introduction I've read about grief and have always counted my blessings at having never experienced it in its truest form. I can't even really recall knowing anyone who has

351

0

11.110 NEOXAG

11 months ago

The City of Neoxian

Anyone Esle Got Kids Who've Needed Infusions? ▶️ Watch on 3Speak Unfortunately for long term steroid users, bones can quickly bec

8

0

1.419 NEOXAG