Whiplash...Orhto is being kind...for now

So this is weird. Well kind of. it's actually exactly how abusers act. They abuse then act sickening sweet so you don't leave them then abuse again. The cycle continues.

This is what appears to be happening with the ortho and his office. Had to go in for a check up. He was attentive and validating and had some input. He also said he would refer me for nerve testing but is waiting for at least 8 weeks because it may be a false negative if I get it too soon.

He also is working with my PCP to get my pain treated with at least a little codeine.

I demonstrated my discoloration when sitting upright (I am usually lying down because I faint if I am upright more than a few minutes). He saw a slight difference between the two sides. The ankle that has surgery was more blue, but tips of toes were white-similar to reynauds. Both sides were exactly the same before surgery(acrocyanosis and mottling from dysautonomia/POTS). I was sitting up for a couple of minutes and he was able to notice what I call "the switch".

It's what happens right before near/syncope. I start to have difficultly communicating and I look different (dazed I suppose). He said "Do you need to lie back down"? Then offered to give me a minute before asking more questions. I was able to say in a somewhat joking matter "See this is why I am bed and housebound and coming to in person appointments is so difficult. It's not a lifestyle choice". I think he actually got it.

Not all POTS patients have the mottling and discoloration. This is usually people who have POTS because of an underlying neurological condition or neuropathy or both. I have all subtypes of POTS as I am also hyperadernergic and low blood volume and high inflammation. Though blood volume is improving now that I can hold on to sodium better.

When I am upright even sitting upright blood does not go to my brain like a healthy person. People with my condition (I am referring to ME/CFS here not necessarily POTS)have an average of 25% decrease in blood flow to the brain when upright. I haven't had a doppler but my guess based on my severity is I have a 30% or more reduction in blood flow to the brain when sitting upright. Standing is even worse.

Setting up an ultrasound soon to check for clots and my veins.

Even the office manager who has spent the past few weeks harassing me and trying to catch me in a "gotcha" because "if you can come in on Monday you are healthy enough to come in Thursday" that is not how dynamic disabilities and post exertional neuro immune exhaustion work.

Now they are bending over backwards to try to get me in home PT.

I do not think this is out of kindness. I think they are terrified of a lawsuit because they messed up so many things and me going to the ER with definitive proof of infection really scared them.

I'll take the win but damn this is triggering, It really is just like being in an abusive relationship.The office manger is not a good actress lol. Ortho seems terrified I am gonna sue him. Depending on how the nerve test goes I may.